Parenting Journal · Volume 2 · Issue 3 · Licensed source edition
Improving shared decision‑making between paediatric haematologists, children with sickle cell disease, and their parents: an observational post-intervention study
Originally published 2025-06-12 · European Journal of Pediatrics
Springer Science and Business Media LLC · DOI 10.1007/s00431-025-06241-2 ↗
Editorial reading guide · Collaboration
How can a family recognize when a child has been invited into a treatment discussion?
The study evaluates involvement in decisions after clinicians received training and families were offered supporting tools. It differentiates the roles of child, parent and clinician.
Who was studied?
Children with sickle cell disease, their parents and pediatric hematologists in a university outpatient clinic.
Age / stage: Pediatric sickle cell care
Read with three questions
- What changed in the consultation process, and how was involvement scored?
- How did the outcome measure change between baseline and follow-up?
- Where in the decision process could the child, the parent and the clinician express different priorities?
Keep the limits in view
Changes after a program can reflect ordinary development, other care or measurement effects. The comparison and duration of follow-up determine what can be attributed to participation.
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Original authorship, publication date, journal and DOI are preserved. This issue’s TRICK placement and reading questions are editorial additions, not claims made by the original authors.
Ricardo O Wijngaarde; Samantha C Gouw; Dirk T Ubbink (2025). Improving shared decision‑making between paediatric haematologists, children with sickle cell disease, and their parents: an observational post-intervention study European Journal of Pediatrics. https://doi.org/10.1007/s00431-025-06241-2
Permissions checked against the saved article notice; repository publication notices screened 2026-11-04. This is not a new peer-review decision. The source authors and publishers are not represented as endorsing this issue.