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Parenting Journal · Volume 1 · Issue 2 · Licensed source edition

Health Care Professionals’ and Parents’ Perspectives on the Use of AI for Pain Monitoring in the Neonatal Intensive Care Unit: Multisite Qualitative Study

Nicole Racine; Cheryl Chow; Lojain Hamwi; Oana Bucsea; Carol Cheng; Hang Du; Lorenzo Fabrizi; Sara Jasim; Lesley Johannsson; Laura Jones; Maria Pureza Laudiano-Dray; Judith Meek; Neelum Mistry; Vibhuti Shah; Ian Stedman; Xiaogang Wang; Rebecca Pillai Riddell; Khaled El Emam; Bradley Malin; Matthias Görges; Jari Haverinen

Originally published 2024-02-09 · JMIR AI
JMIR Publications Inc. · DOI 10.2196/51535 ↗

RespectMultisite qualitative parent and professional interview studyCC BY 4.0
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AI / system type

AI pain-monitoring concepts / qualitative perspectives

Direct parenting evidence

Directly addresses parents or caregiving, including parent studies, syntheses and audits of parenting advice.

The AI connection

Explores stakeholder expectations and ethical concerns about AI-assisted neonatal pain assessment.

Why this reading matters

Provides parent evidence in a vulnerable early-life setting where consent and preserving human relationships are particularly important.

Editorial reading guide · Respect

How can a parent’s role be respected when AI is proposed to monitor an infant’s pain?

The study examines parents’ desire for choice, involvement and human care when AI is proposed for infants unable to speak for themselves.

Study context

Twenty parents and 20 professionals in Canadian and UK neonatal intensive care units

Age / stage: Preterm infants; mean infant age 43 days in the parent sample

Read with three questions

  1. What potential benefits and distress did parents describe?
  2. What choices and explanations did they want?
  3. How did broad decision-support discussion differ from evaluation of a real pain-monitoring algorithm?

Keep the limits in view

The sample involved highly educated English-speaking parents and well-resourced academic hospitals. Some views concerned technology broadly; no implemented AI system or infant outcomes were evaluated.

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Original authorship, publication date, journal and DOI are preserved. This issue’s TRICK placement and reading questions are editorial additions, not claims made by the original authors.

CC BY 4.0 · License notice ↗Original repository record ↗

Nicole Racine; Cheryl Chow; Lojain Hamwi; Oana Bucsea; Carol Cheng; Hang Du; Lorenzo Fabrizi; Sara Jasim; Lesley Johannsson; Laura Jones; Maria Pureza Laudiano-Dray; Judith Meek; Neelum Mistry; Vibhuti Shah; Ian Stedman; Xiaogang Wang; Rebecca Pillai Riddell; Khaled El Emam; Bradley Malin; Matthias Görges; Jari Haverinen (2024). Health Care Professionals’ and Parents’ Perspectives on the Use of AI for Pain Monitoring in the Neonatal Intensive Care Unit: Multisite Qualitative Study JMIR AI. https://doi.org/10.2196/51535

Permissions checked against the saved article notice; repository publication notices screened 2026-11-04. This is not a new peer-review decision. The source authors and publishers are not represented as endorsing this issue.